“Don’t take him home. He won’t live long anyway… One day you’ll thank me for this decision,” my husband said about our nevado newborn son before walking out of the hospital that very same day. And in that moment, I made a decision I might still regret for the rest of my life

They wanted to turn Jake’s notebooks into a book.

I thought Jake would refuse.

Instead, he said,

“I want to choose the title.”

“What do you want to call it?”

He thought for a moment.

“Beyond the Face.”

The book was published the following year.

So many people came to the launch that there wasn’t an empty seat in the auditorium.

Sitting in the front rows were some of Jake’s classmates.